Floating Harbor Syndrome Support Group

Medical information for parents and family members of children and adults with Floating Harbor Syndrome.

Thursday, January 27, 2011

List of Medical Journal Articles on FHS

Posted by The Plain Professors at 2:55 PM
Newer Posts Older Posts Home
Subscribe to: Posts (Atom)

Labels

  • updates
  • Floating Harbor Syndrome
  • Growth Hormone Therapy Shots
  • diet
  • education
  • growth hormone shots
  • progress
  • updates on members
  • Brain Stimulation
  • Calcium
  • Contact info
  • Delays
  • Eyes
  • FHS gene discovered
  • Floating Harbor Syndrome Support Group
  • Growth
  • John Hopkins study
  • June 2007 RAGES
  • SLEEP
  • Trail-a-bike
  • Welcome
  • diagnosis
  • sign language
  • speech
  • therapy

WELCOME!

Welcome to the Floating Harbor Syndrome Support Group blogspot. This is intended for group members or others who would like to read our past newsletters, journal articles or other information to learn more about FHS.

Pages

  • Home

FHS Photos

FHS Photos

Search This Blog

Popular Posts

  • Pictures of Jesse at Different Ages
    Jesse at 10 years of age.  Jesse at 11 years of age.  He learned to ride a bike this year. Jes...
  • Floating Harbor Syndrome -- Birth to Adulthood
    I received an email from an FHS mom today whose son was recently diagnosed with FHS.  She wanted to know our story.  I could write a book,...
  • Mutations in SRCAP, Encoding SNF2-Related CREBBP Activator Protien, Cause Floatin-Harbor Syndrome
    Mutations in SRCAP, Encoding SNF2-Related CREBBP Activator Protein, Cause Floating-Harbor Syndrome Rebecca L. Hood,1,2 Matthew A. Lines,3 Sa...
  • Safe Harbor, The Newsletter of the FHS Support Group, July 2008, Issue 18
    SAFE HARBOR, The official newsletter of the Floating Harbor Support Group July 2008, Issue 18 Content appears as written by individual auth...
  • A Visit to the Eye Doctor
    Two of Jesse's first surgeries were for bilateral strabismus (crossed eyes) and zonular cataracts.  Zonular cataracts are not the ki...
  • Summary of Canadian Discovery of the FHS Gene
    Dr. Kym Boycott’s lab in Ontario, Canada recently discovered “SRCAP” as the gene which causes Floating Harbor Syndrome (FHS), a condition...
  • Safe Harbor, FHS Support Group Newsletter Sept. 2013
    Ontario Medical Lab Discovers FHS Gene by Dr. Meghan Connolly      Dr. Kym Boycott’s lab in Ontario, Canada recently discovered “SRCA...
  • Schooling Notes
    Many parents and educators have asked the question, "How do we deal with our FHS children in school situations?" There have been ...
  • Bina in Michigan
    Hello FHS Support Group. I want to introduce our family and my daughter Blandina who has FHS. Pictured here is “Bina” with her big sister...
  • Safe Harbor Newsletter Summer 2012 Page 1

About Me

My photo
The Plain Professors
Welcome! I am a wife, mother, and teacher. My husband and I have been teachers for several years, and we love what we do.
View my complete profile

Blog Archive

  • October (6)
  • January (1)
  • April (8)
  • May (2)
  • June (1)
  • July (4)
  • September (1)
  • March (2)
  • October (1)
  • November (1)
  • February (3)
  • December (2)
  • November (1)
  • May (1)
  • July (1)
  • September (1)

Translate
Simple theme. Theme images by gaffera. Powered by Blogger.